About the Registry
A voluntary national research platform that brings together information about adults living
with Multiple Myeloma (MM) and related blood conditions across the Republic of Ireland
What is a clinical registry?
A clinical registry brings together health information from a group of people living with the same condition. By collecting information in a consistent and standardised manner, we can follow how a condition evolves over time and study disease patterns and outcomes in this given condition. This type of information is called real-world data (RWD) and allows researchers to build a broader picture of how a condition is managed and how people respond to treatment.
Why a registry for Multiple Myeloma (MM)
Multiple Myeloma is a complex disease that can behave differently from one person to another, meaning that each person can experience a different disease journey. People may receive different treatments and experience different responses to treatments, as well as periods of remission, progression or relapse.
The Multiple Myeloma Registry Ireland
This Registry aims to establish a national, long-term platform to collect and bring together valuable clinical information on diagnosis, disease characteristics, treatments, treatments
response and outcomes from participants across the Republic of Ireland. By building this resource, it can overtime support clinical and translational research for a better understanding of MM and ultimately support care.
How the Registry work ?
This outlines how it works:
What happens after you give your consent ?
This outlines the process:
