Who can participate ?

 

  • Adults (aged 18 or over)
  • Having a diagnosis of Multiple Myeloma (MM) or a precursor condition (MGUS, SMM)
  • Living/receiving care in the Republic of Ireland

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What do we collect ?

Browse through the information we collect

Personal details

You will be asked to provide personal details

  • Your name
  • Age
  • Gender
  • Smoking status
  • Other health conditions
  • General health status and fragility

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Your Diagnosis

 

We will record the type of Multiple Myeloma that you have and how it is affecting your body

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Laboratory & Scan Results

 

We will record your blood, urine and scan results in order to better understand your disease

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Treatment History

 

We will record all of the treatment that you have received up until this time and into the future

 

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Supportive Care

 

We will take a note of any supportive care that you have received along your cancer journey

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Precursor Conditions

 

The Registry also include patients who do not have cancer but have precursor conditions that can, in some people, lead to Multiple Myeloma.  This enables us to better understand why some patients progress to this disease and others do not

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How to participate

How can I get involved ?

 

Register your interest Register and consent

Let us know that you are interested
in the Registry by filling out a form
and that you would like to receive
more information about taking part.

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Join the Registry by filling out a
questionnaire and give consent for
the Registry to access clinical information about your
condition.

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MMR data

 

Join Multiple Myeloma Registry