Lunchtime Seminar: 'Individual rights and electronic health data: a critique of the proposed European Health Data Space'

Nov 10 2022 Posted: 15:21 GMT

The Irish Centre for Human Rights continues its lunchtime seminar series with an examination of the increasingly important question of the sharing of health data, which raises complex legal and ethical concerns and impacts our right to autonomy, privacy, and non-discrimination. Regulatory attempts to address some of these concerns, notably the General Data Protection Regulation (GDPR) have resulted in a fragmented legal landscape that has hampered the sharing of data for research. We are delighted to welcome Dr Ciara Staunton, to the Irish Centre for Human Rights to discuss these issues. Looking forward to seeing you there!

The seminar takes place at 1pm, Friday, 11st November 2022, in the Seminar Room, Irish Centre for Human Rights. All are welcome to attend.

Dr Ciara Staunton is a Senior Researcher at the Institute for Biomedicine, Eurac Research (Italy). In addition, she is an Honorary Research Associate at the Faculty of Health Sciences, University of Cape Town, and a Consultant to the South African National Institute for Communicable Diseases. Her research focuses on the governance of new and emerging technologies, in particular stem cell research, genomic research and biobanking, and the use of health data in research, and she is a member of a number of international advisory boards providing ethico-legal oversight on these topics.